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Study Assesses Hospice Use


As hospice for nursing home patients grows dramatically, a new study from the Regenstrief Institute and the Indiana University Center for Aging compares the characteristics of hospice patients in nursing homes with hospice patients living in the community. The study provides details on how hospice patients move in and out of these two settings.

Longer stays in hospice care, rising costs, and concerns over possible duplication of services have led to increased policymakers’ scrutiny of hospice patients living in nursing homes. Nursing home patients have longer hospice stays compared with individuals living in the community.

The researchers, led by Regenstrief Institute investigator and IU Center for Aging Research scientist Kathleen Unroe, MD, MHA, found that nursing home hospice patients were older, more likely to be women, more likely to be on both Medicare and Medicaid, and more likely to have dementia than individuals receiving hospice services outside a nursing home.

Nationally, an estimated 40% of Medicare recipients die under hospice care. In the study, one in three Medicare recipients died under hospice care. Cancer was the leading primary diagnosis for all hospice patients, although nursing home hospice patients were as likely to have a dementia diagnosis as a cancer diagnosis both nationally and in the study. “Hospice is a poor fit for many people in nursing homes due to the way eligibility criteria currently are configured,” Unroe says. “Yet nearly a third of hospice patients in the United States live in nursing homes, and the number is growing. Our goal is to understand more about who uses hospice and where they live so that policymakers can make informed decisions as they contemplate redesign of the hospice benefit.”

Using 11 years of data, the researchers initially planned to contrast two groups: those who received hospice care in nursing homes and those who received hospice care in the community. But according to Unroe, it became apparent that the following four groups required study:

• patients receiving hospice care only in nursing homes;

• individuals who received hospice services only in nonnursing home settings;

• crossover patients who used hospice in both settings; and

• a transition group who received hospice care within 30 days of transition into or out of a nursing home.

Medicare spending on crossover and transition hospice patients was higher than Medicare costs for hospice patients in nursing homes or in the community, according to the new study.

While nursing home patients have longer hospice stays compared with individuals living in the community, the number of days in hospice care was significantly higher for the crossover group than for any other group. Nearly one-third of crossover patients had hospice stays greater than six months. Overall, for the four groups, 28% of patients had a hospice stay of less than one week.

“Policymakers need to look at all four groups and consider potential consequences of regulatory decisions for these patients,” Unroe says.

— Source: Indiana University School of Medicine